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Privacy Policy

I. Scope of this Privacy Policy

This Privacy Policy describes Every Cure’s privacy practices with regard to information Every Cure collects about you when you interact with www.everycure.org and any related sites operated by Every Cure that post a link to this Privacy Policy (collectively, the “Sites”), including, but not limited to, by responding to a survey, making a donation, or becoming a member of the online community

Every Cure is committed to ensuring that your privacy is protected. Should we ask you to provide certain identifying information, it will only be used in accordance with this privacy statement.

We will not sell, distribute, or lease your personal information to third parties unless we have your permission or are required by law to do so. We may use your personal information to send you information that we think may be of interest to you with your consent. Every Cure may change this policy by updating this page. You should check this page to be sure that you understand and are happy with any changes.

By using the Sites, you explicitly accept, without limitation or qualification, our practices surrounding the collection, use, and sharing of personal information provided by you in the manner described in this Privacy Policy. If you do not agree with the terms of this Privacy Policy, do not access, browse, or use the Sites.

II. Personal Information We Collect

1. Actively Collected Information
The Sites offers users the ability to learn about Every Cure and to contribute to Every Cure research and other supportive causes. While you do not have to give us any personal information to browse this Sites, you may be asked to provide personal information if you wish to interact with us (e.g., by signing up to receive email updates, filling out a form, sending us an email, requesting information, responding to our requests, applying for a job, or making a donation). This information may include your full name, e-mail address, postal address, other demographic information, location, photographs, videos, and any other information or media you voluntarily provide. Once you provide us with personal information about you, you are no longer anonymous to us.

Online donations to Every Cure through the Sites are processed using PayPal, and you may be required to provide the following personal information about you: full name, billing address, e-mail address, telephone number, credit/debit card number, credit/debit card expiration date, credit/debit card CVV number, credit/debit card type (Visa, MasterCard, Discover, or American Express), and such other financial information necessary to process your payments. You may also be asked to indicate whether your employer will match your donation and whether your current estate plan provides for Every Cure. We encourage you to review PayPal’s terms of use and data protection at https://www.paypal.com/us/legalhub/paypal/home so you can understand how they collect, use and share your information before you make a donation. Every Cure will only see and retain the full name and amount of the donation, and such information will be handled pursuant to the terms of this policy.

2. Passively Collected Information
We may collect certain information about your use of the Sites through the use of tracking technologies or by other passive means. We may use Google Analytics to help us collect and analyze this information. This “passively collected” information includes, but is not limited to, the domain name of the website that allowed you to navigate to the Sites, search engines used, the internet protocol (IP) address used, the length of time spent on the Sites, the pages you looked at on the Sites, other websites you visited before and after visiting or accessing the Sites, the type of internet browser you have, the frequency of your visits to the Sites, and other relevant statistics, including the following:

  • Log Information. When you access the Sites, our servers automatically record information that your browser sends whenever you visit a website. These server logs may include information such as your web request, IP address, MAC address, computer type (e.g., Windows or Macintosh), operating system version, browser type and version, browser language, the date and time of your request, and one or more cookies (small text files containing a string of characters) that may uniquely identify your browser. We use this information to calculate Sites usage levels, to diagnose server problems, to administer the Sites, and to improve the quality of the Sites.
  • Links. The Sites may include links in a format that enables us to keep track of whether these links have been followed by IP addresses. We use this information to improve the quality of the Sites’ design.
  • Cookies. When you visit or access the Sites, we send one or more cookies (small text files containing a string of characters that asks permission to be placed on your computer’s hard drive) to your computer that uniquely identify your browser. We use cookies to improve the quality of the Sites by storing user preferences and tracking user trends. We only use this information for statistical analysis purposes. Cookies also help us better serve you with more tailored information and facilitate your ongoing access to and use of the Sites. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us. Most web browsers accept cookies automatically, but can be configured not to do so or to notify the user when a cookie is being sent. If you wish to disable cookies, refer to your browser help menu to learn how to disable cookies. Please note that if you disable cookies, you may not be able to use some customized features on the Sites.
  • Web Beacons. Web beacons (also known as “pixel tags” or “clear “GIFs”) are 1×1 single-pixel graphics that allow us to count the number of users who have visited or accessed the Sites and to recognize users by accessing our cookies. We may employ web beacons to facilitate Sites administration and navigation, to track the actions of users of the Sites, to compile aggregate statistics about Sites usage and response rates, and to provide an enhanced online experience for visitors to the Sites. We may also include web beacons in HTML-formatted e-mail messages that we send to determine which e-mail messages were opened.

III. How We Use Personal Information

1. Personal information collected through the Sites may be used by Every Cure and its affiliates for purposes of:

  • Processing donations made through the Sites;
  • Creating a list of donors who have contributed to Every Cure;
  • Responding to your questions, emails, or other inquiries or requests;
  • Contacting you, if you opt-in to such communications, whether by email or postal mail, with information about the Sites or our programs, services, and fundraising efforts such as newsletters, organizational updates, updates about research on Every Cure, or new diagnostic or treatment options, or to conduct surveys or gather other information regarding the Sites;
  • For such purposes as you may authorize at the time you submit the information;
  • Auditing, research, and analysis to maintain, protect, and improve our service offerings, to enhance the Sites, to identify usage trends, or to determine the effectiveness of our fundraising campaigns and/or individual fundraising campaigns;
  • Creating a profile based on the information you have provided;
  • Ensuring the technical functions of our network;
  • Developing new services; or
  • Compiling personal information and other information collected through the Sites on an aggregate basis.

2. Personal Information We Share

We do not sell, rent, trade, or otherwise share personal information collected through the Sites, except as described below:

  • Subsidiaries and Affiliates. We may share personal information with our subsidiaries and affiliates for the purposes for which you provided the information or as reasonably necessary for our internal administrative and business purposes.
  • Service Providers. We work with third parties that provide services on our behalf. Such services may include website hosting, marketing, data analysis, infrastructure provision, IT services, customer service, email delivery services, and website usage analytics. We may share personal information with these third parties for the purpose of enabling them to provide these services.
  • Google Analytics. We will use Google Analytics to gather statistics on users of the Sites. We will use the information gathered to improve web services. According to Google, Google Analytics employs cookies to define user sessions, which allows for the collection of important data about how users use the Sites. Google Analytics uses only first-party cookies for data analysis. This means that the cookies are linked to the Sites’s website domain(s), and Google Analytics will only use that cookie data for statistical analysis related to your browsing behavior through the Sites. According to Google, the data collected cannot be altered or retrieved by services from other domains. If you choose, you can opt out by turning off cookies in the preferences settings in your browser. For more information on Google Analytics, please visit Google’s web site.
  • Third Party Payment Processors. If you make donations through the Sites, we may share personal information with third parties who process payments on our behalf. Every Cure is not responsible for the conduct of any third parties who process payments on our behalf, and we expressly disclaim all liability for damages of any kind arising out of the action or inaction of such third parties.
  • We may share personal information in accordance with any consent you provide.
  • Donor Lists. If you make a donation through the Sites, we may include your name in our list of donors on the Sites, unless you request that the donation be anonymous.
  • Required by Law. We may disclose personal information if we are required to do so by law or pursuant to legal process, in response to a request from government officials or law enforcement authorities, or as necessary or appropriate in connection with an investigation of illegal activity.
  • Certain Transactions. We may disclose or transfer personal information to third parties who acquire all or a portion of Every Cure’s business, whether such acquisition is by way of merger, consolidation, or purchase of all or a portion of our stock or assets, or in connection with any bankruptcy or reorganization proceeding brought by or against us.
  • In each of these situations, the recipients of your data may potentially be located in countries whose data protection legislation is different from your country. If you are a resident in any EU member state, for example, you must be aware that the EU authorities do not generally consider that the regulations of non-EU countries ensure an adequate or equivalent level of protection as compared to the EU data protection regulations.

3. Aggregate Information

We may compile personal information and other information collected through the Sites on an aggregate basis. This information may include, without limitation, demographic information about users of the Sites. Such aggregate information is anonymized and does not identify you individually. We may use aggregate information and share aggregate information with third parties for any of the purposes specified above in this Privacy Policy, or for any other lawful purpose.

IV. Your Choices

1. Information You Provide

You can always choose whether or not to provide information through the Sites. However, if you choose not to disclose certain information, your access to certain portions of the Sites may be limited. If you have previously agreed to share your personal information with us, you may change your preference(s) at any time by emailing us at [email protected]. If you believe that any information we are holding is incorrect or incomplete, please email us at [email protected] so that we can correct information according to your direction/instruction. You also may obtain, upon request, the Personal Information you provided to us in a structured, commonly-used and machine-readable format. Before providing you with a copy of your Personal Information or correcting, updating or deleting such information, we reserve the right to verify and authenticate your identity and the Personal Information to which you have requested access.

2. Communications From Us

If at any time you decide that you no longer wish to receive communications from Every Cure that are unrelated to your transactions on the Sites, you may indicate this preference by sending us an email at [email protected] or sending a letter via U.S. mail to:

Every Cure
3675 Market Street, Suite 200
Philadelphia, PA 19104

Please note that these opt-out or unsubscribe options do not apply to communications relating to the administration of services, contracts, support or other administrative and transactional notices, where the primary purpose of these communications is not promotional in nature.

3. Updating Information

We encourage registered users of the Sites to keep their personal information current. You may change personal information you have provided about you by sending us an email at [email protected] or sending a letter via U.S. mail to:

Every Cure
3675 Market Street, Suite 200
Philadelphia, PA 19104

V. Information Storage and Security

We employ reasonable security precautions to protect personal information about you. The Sites are operated from a secure environment with integrated security measures to help protect against the loss, misuse, and alteration of personal information provided through the Sites. These security measures include Secure Socket Layer (SSL) technology data transmission. However, no method of transmitting or storing data is completely secure. As a result, although we strive to protect personal information about you, we cannot guarantee the security of any information you transmit to us through or in connection with the Sites. Please consider this prior to submitting any personal information via the Sites. If you have reason to believe that personal information is no longer secure, please notify us immediately by contacting us in accordance with the last section below.

VI. Information Retention

Every Cure retains Personal Information that we receive for as long as necessary to fulfill the purpose(s) for which the information was collected, to provide our services and products, to pursue legitimate business purposes, to enforce our agreements, and comply with all applicable laws. Subject to the above, we will typically store data relating to donors and supporters for seven (7) years after their last donation or interaction with us unless you request that such information be deleted and such removal does not violate Every Cure’s legal or regulatory obligations.

VII. A Special Note about Children

The Sites is neither designed nor intended to attract children under the age of 18, and we do not collect personal information from any individual who we actually know is under the age of 18. We ask that children under the age of 18 not submit any personal information to us. Personal Information on children under 16 will only be knowingly collected with the consent of their parent or guardian.

VIII. External Links

The Sites contains links to various websites that Every Cure does not control. When you click on one of these links, you will no longer be transacting business through the Sites. Third party websites maintain their own privacy policies, and we do not exercise any control over any of the third party websites that may be linked to the Sites. If you visit a website that is linked to the Sites, you should consult that website’s privacy policy before providing any personal information. Please be aware that we are not responsible for the privacy practices of such other websites, and we are not liable for their misuse of personal information about you.

IX. Special Admonitions for International Use

The owner of the Sites is based in the State of Pennsylvania in the United States. Access to the Sites may not be legal by certain persons or in certain countries. If you access the Sites from outside the United States, you do so on your own initiative and are responsible for compliance with local laws. If you are located outside the United States and you contact us or provide information through the Sites, please be advised that any information you provide to us will be transferred to the United States, and that by submitting information, you explicitly authorize such transfer.

X. Updates to this Privacy Policy

We may change or update the Sites or any of our policies and procedures without prior notice. We will post a notice on this Sites to advise you of any significant changes to this Privacy Policy and indicate at the top of this statement when it was most recently updated. Your continued use of the Sites signifies your continued assent to the terms of this Privacy Policy, as updated or amended at that time.

XI. Your European Rights

We do not share Personal Information with third parties for their direct marketing purposes unless you affirmatively agree to, or opt in to, such disclosure. In accordance with Article 77 of the General Data Protection Regulation, Europeans also have the right to lodge a complaint with a supervisory authority, in particular in the Member State of your habitual residence, place of work or of an alleged infringement of the GDPR.

XII. Questions Regarding this Privacy Policy

If you have any questions or comments regarding this Privacy Policy, please send us an email at [email protected] or send a letter via U.S. mail to:
Every Cure
3675 Market Street, Suite 200
Philadelphia, PA 19104

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